MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
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Antal avsnitt
114
Senaste avsnittet
4 juli 2026
Genomsnittslängd
81 min
Utgivningstakt
Nytt avsnitt varannan vecka
Totalt antal minuter
9227 min
Aktiva år
2022 - 2026
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MyFSHD
Visar 1–10 av 114 avsnitt
4 juli 2026
Cleaning the lipstick off a pig
141 min
21 juni 2026
World FSHD Day 2026
109 min
17 maj 2026
Evaluating gene expression data in FSHD and presenting at ASGCT
117 min
9 maj 2026
Reddit Q&A (part 2). No "A", a little "I". Peter and Brad finish up the line of Reddit questions.
124 min
29 mars 2026
Some clinical trial news of the day (March 27, 2026 - **updated March 29th**)
69 min
27 mars 2026
Reddit Q&A 3/17/2026 pt 1 (no song); Peter sits down with Brad our Angry Dad
115 min
15 januari 2026
Our takes on recent (~Jan 2026) FSHD clinical trial updates
46 min
25 oktober 2025
More questions and comments with Brad, our Angry Dad
84 min
14 september 2025
All-in-one version of our evaluation of EPI-321 data and trial
96 min
6 september 2025
Our evaluation and opinions of the EPI-321 clinical trial design and potential based on the pre-clinical data
46 min
