Sarah Downey

This week, we speak with Sarah Downey, an angiosarcoma patient, advocate, and writer. Sarah takes us through her diagnosis journey, which included misdiagnosis and dismissal of symptoms, all while navigating her senior year of college. Since her diagnosis, she has navigated treatment as she’s entered young adulthood, and shares with us what it’s been like coping with the uncertainty of sarcoma alongside this major life transition.

A lifelong writer, Sarah recently began the project Echoes of Us RI to highlight stories of fellow patients, medical professionals, and caretakers, contributing to narrative medicine as a form of advocacy. Sarah explains how this has played a role in her journey, and also given her both an outlet and a purpose.

When she isn’t writing or at treatment, Sarah travels as much as she can (and gives some tips on how she makes this work between treatments!), and talks about how she chooses to live despite her prognosis.

This episode will both educate and inspire - true to Sarah as a writer and a human.

Resources:

Subtype Page: curesarcoma.org/sarcoma-subtypes/angiosarcoma/

Discussion Guide: curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Sarcoma Stories FB Group: www.facebook.com/groups/512452631597704

Connect with Sarah:

Sarah’s Instagram: : www.instagram.com/sarah.downey20/

Echoes of US RI Instagram: www.instagram.com/echoesofusri/

Echoes of Us RI: www.echoesofusri.com/