The Girl Who Couldn’t Eat

Rachel is starving to death, but doctors can't agree what’s wrong with her. In desperation her family fundraises for life-saving surgery she can only get overseas. Rachel has Ehlers-Danlos, a syndrome dividing the medical community.

Read more about this episode and see other photos and videos on the RNZ website here

A special thanks to the young women and their families for sharing their stories for this series. And thank you to the doctors, surgeons and specialists in New Zealand and overseas for sharing their medical knowledge and expertise.

If any of these stories affect you – you can find more information about EDS, at ehlers-danlos.org.nz - or you can look up EDS NEW ZEALAND on Facebook and Instagram.

Go to this episode on rnz.co.nz for more details