24 juni 2026
31 min
Sensitive Content Notice: This episode discusses brain donation and postmortem tissue research.
Our goal at PMSF is to provide clear, transparent information so families can better understand all areas of research. While we approach this sensitive topic with care and compassion, we recognize this episode may not be suitable for everyone.
In this episode, Dr. Lauren speaks with Dr. Alyicia Halladay (Chief Science Officer at the Autism Science Foundation) and Lilliam Acosta (Outreach Manager at Autism BrainNet) about Autism BrainNet, a program funded by the Simons Foundation that supports autism research through the gift of brain donation. Together, they address common questions and misconceptions and discuss how postmortem brain tissue can help advance research in Phelan-McDermid syndrome.
To learn more about Autism BrainNet: https://www.autismbrainnet.org/
You can also sign up for the Autism BrainNet newsletter here:
https://www.autismbrainnet.org/newsletter/
💚 We also recognize that conversations about loss can bring up difficult emotions. PMSF offers a monthly support group for bereaved Phelan-McDermid syndrome parents. You can learn more about this support program here: https://pmsf.org/caregiver-support-groups/
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The Phelan-McDermid Podcast: Sharing Research, Progress, and Hope
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